Have your say and get involved

Engagement and co-production

Details of local and national engagement and co-production opportunities.

Tell us about your lived experience of local education, health and social care services - November 2024

Join us at an engagement session or complete a survey to tell us about your lived experience to feed into the SEND specific Joint Strategic Needs Assessment (JSNA). Also learn about progress against the SEND Strategic Action Plan. Read more.

Development of the SEND Local Offer channel on the new Livewell Southend website

The new Livewell Southend website launched in June 2023. It is important that the SEND Local Offer section of the site:

  • meets the needs of families and professionals
  • has clear information that is easy to find

The Local Offer team hosted some events. Parent carers, young people and professionals told us what they liked and what needed to be improved or changed. Sessions focused on the Local Offer landing page and subject area landing pages. See the You Said, We Did page for details of changes made.

If you are a group or organisation that supports families of children with SEND, or a school, tell us if you'd like us to come to a parent carer session to deliver a Local Offer introduction/feedback session.

We also welcome direct feedback. You can:

Development of `roadmaps` to help parent carers navigate local SEND services and support

In the SEND Strategic Action Plan, we committed to co-produce `roadmaps` outlining services accross education, health and social care in a range of accessible formats.

Based on initial feedback from parents at SSIF seminars, the SEND Local Offer team has drafted some easy-to-follow roadmaps to guide you through key processes:

  • EHCP annual review process
  • Education Health and Care Needs Assessment process
  • Early identification and support for SEND in the early years

In October 2024 we ran some engagement sessions where parent carers gave us feedback on the draft roadmaps. We will incorporate the feedback points into the draft roadmaps and will share the final versions. We will be producing further roadmaps and will seek feedback when others are drafted.

We also ran a session about health assessment pathways roadmaps at a SSIF seminar on 11 October.

If you would like to be involved in development of further roadmaps, please email localoffer@southend.gov.uk

Guides on the Annual Review and Education Health and Care Needs Assessment process

In September 2022 we launched surveys for parents and carers about their experience of the Annual Review and Education and Health and Care Needs Assessment (EHCNA) processes. In January 2023 a survey for young people about the annual review process launched.

Common themes have emerged. This includes some dissatisfaction of how parents are involved and prepared for annual review meetings, the input of professionals, frustration with assessment delays and communication from the Team. Themes emerging from young people included:

  • not having enough help to prepare for the review
  • not feeling confident their views were listened to

The Local Offer team held 3 focus groups in October and November 2023. Feedback was gained from parent carers and young people about the EHCP Annual Review process and the Education, Health and Care Needs Assessment process.

Feedback suggested:

  • the experience of accessing advice and support was smoother when the child's needs were identified earlier and;
  • that more support was needed to understand the ECHP assessment process

There were suggestions for how to make the experience better:

  • clearer routes to access advice and support. To include understanding criteria and managing expectations around waiting times
  • regular and clear communication is needed to improve trust, help families feel heard and more involved with the process and develop good working relationships
  • clearer advice on where to access information about future support needs

Thank you to families who took part and those who have taken the survey so far. The Local Offer team have committed to prioritise the development of guides for families to understand each process as this has been a common recurring suggestion.

If you wish to be involved in development of the guides please email localoffer@southend.gov.uk

Live surveys:

SSIF family feedback survey

Southend SEND Independent Forum (SSIF), the SEND Parent Carer Forum for Southend want to hear from families about their experiences of SEND in Southend.

Complete the SSIF family feedback form.

Southend City Youth Council

Southend City Youth Council represent the youth of Southend and promote youth voice. It is open to any young person aged 11 to 18 who lives or goes to school in Southend-on-Sea.

The main aim is to provide a platform for young people in the city to have a say over how thier home is run. The Youth Council meet to discuss the issues that affect, or are important to, the youth of Southend. Members run campaigns targeting specific issues that have been raised by young people.

To find out more, or if you would like to be involved visit: www.southendcityyouthcouncil.com

Voices of the East forum for young people with SEND

Voices of the East is a group for children and young people with SEND aged 5 to 25. It is an East of England region forum supported by the Essex Multi-Schools Council. It provides an opportunity for children and young people to:

  • speak out about things that matter to them
  • meet new people
  • hear inspirational stories

Action will be taken on the things discussed!

Meetings are held virtually every 1 to 2 months on Microsoft Teams. They are held at a range of times, to enable attendance during or after school. There will also be opportunities to get involved in person. Meetings are interactive and include games. Future meeting dates are 16 September and 16 October.

To find out more:

Email kierran.pearce@essex.gov.uk to get involved or for further questions.

Traverse group for young people

Traverse is an opportunity for young people who are interested in health services to learn more and share their views.

So far the group have been able to interview system leaders, attend a youth conference and do some team building tasks. For every full meeting young people attend they receive a £30 amazon voucher for their time! The group meets around every 6 weeks. Virtual meetings are a maximum of 1.5 hours and in person meetings a maximum of 3 hours.

The group is overseen by the Essex Multi-Schools Council. It is open to applications from young people who want to make a difference! If you are interested, please email mschoolscouncil@gmail.com

Learning Disability User Voice Group

The Southend Learning Disability User Voice Group is for those aged 18 years and over with lived experience of learning disabilities. The group provides an opportunity to have a voice, be part of co-production and have representation at Living Well Strategy group meetings. Find out more about the group here.

Mid and South Essex Integrated Care System

Mid and South Essex Integrated Care System (MSE ICS) are committed to listening to and understanding patient needs. Find out how to have your say and influence the development of health services in the future. Get involved information on the MSE ICS website.

EPUT patient forums and networks

Essex Partnership University NHS Foundation Trust (EPUT) has forums and networks for:

  • patients
  • their families
  • their supporters

This includes a carer network and a neurodiversity network. Everyone who uses their services is invited to be involved in decision-making about their care and has the opportunity to help improve the care delivered. For more information, visit: Patient forums and networks (eput.nhs.uk).

EPUT Co-Production Conference

EPUT held their second Co-Production Conference on Thursday 10 October 2024. It was an inspirational and informative day. Read about the event here.

Further information